My doctor prescribed 25 mg Topamax every evening for headache prevention. I had headache and nausea for several days before starting the Topamax, then after starting the Topamax, the headache pain got worse and I also had pain in my back and ears. I did not get the tingling in extremities but noticed some decreased sense of feeling in my face for a few hours after taking the medicine. The pain got progressively worse then I became depressed and suicidal. I was convinced my life was so bad that I wanted to die. I take 100 mg Zoloft daily for depression and still feel a little depressed and was hoping Topamax would help with this, too. I took Topamax to help with headaches and depression and it made both much worse to the point where I was seriously suicidal. I stopped the Topamax after only 5 days and the pains and nausea have gradually decreased to the point where today I have been virtually pain free most of the day for the first time in 2 weeks. I read on the internet that there is an increased risk of suicide while taking anticonvulsants, but it's rare. I am convinced I am one of the very unlucky people who becomes suicidal on this medication. I have 2 beautiful children, a great job, excellent health other than headaches and depression, and plenty to live for. I still can't believe that less than a week ago I just wanted to die and didn't care about seeing my children and family ever again or ever getting back to my job that I love. It's so hard to believe a drug can cause that kind of thinking. I'm pretty sure my doctor doesn't think the Topamax caused me to be suicidal and has no intentions of reporting my case to anyone. I suspect it's not as rare as they say to become suicidal on this med, it's just not reported enough. I wouldn't be typing this if I were still taking Topamax because I would be lying in bed suffering in pain, sleeping, thinking about how good it would be if I would just die. I went for a CT scan of my brain soon after getting off this med and I remember thinking that I hoped I had a tumor or anurism so I could die. I found out today I don't have a life threatening illness and I am happy about that now and can't believe I was thinking such bad things only a few days ago. I hope doctors take more care in prescribing this medication to people who have a history of major depression because I'm afraid people are going to feel like I felt and kill themselves on this med. I think this drug is great for some people and should be available, but people need to be warned that they may become suicidal and given instructions on what to do if that happens. I had no idea if I should go to the ER or call someone or what, so I just got people to watch my kids and called in sick to work and stayed in bed for a few days. I don't miss work often and am very committed to my job and my children are first in my life, so not being able to care for my kids or go to work made me feel so much more depressed. My doctor referred me to a neurologist and I hope to find some way to get relief from the head, neck, and back pain and the nausea. A few days ago I thought I would kill myself if my doctor couldn't find what was wrong with me and I felt terrible for no reason. Now I have hope. It's just not right that a drug can take away the ability to have hope.

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I'm 31 years old, in a stable relationship and had the Mirena inserted in April in order to lessen the amount of synthetic hormones going into my body. I'd also never really found an oral contraceptive that didn't have some major side effect (nausea every night 2 hours after taking the pill). My doctor told me that the chances of side effects I'd read about on the internet (acne, weight gain, loss of sex drive, depression, etc.) were statistically extremely unlikely.
The side effects didn't appear immediately, but after about 3-4 months, I got everything but the depression. I'm a yogi and practice vigorously 5-6 times a week but was gaining weight around the middle, I broke out in large, deep, incredibly angry pimples all over my chest, back and chin (places I've never had pimples). I hardly wanted to touch my boyfriend. The thing is, it wasn't until I went to see an acupuncturist for my acne that she pointed out that my change in birth control might be the source of some of my symptoms. Once I really started researching side effects of Mirena, I realized that my experience was not as rare as my doctor had made it sound.
I had it taken out today and a Paragard IUD (cooper, without hormones) put in. Even then, the doctor was extremely resistant to even the idea that Mirena had anything to do with any of my symptoms. He was actually rather condescending and aggressive towards me. He did point out that when I had my Mirena put in, I stopped taking Oral Contraceptives and that loss of those hormones could be the cause of my acne. I admit that it could be a possibility, but my acne is worse than when I was a teenager (when I wasn't taking birth control) and in places that I've never had a problem with before. And the loss of hormones don't explain weight gain, vaginal dryness or loss of sex drive. I'm open to the possibility that the Mirena isn't the source of all of my problems. It probably works very well for a lot of people. However, my personal experience along with the other women on this site should be taken seriously by the medical community instead of cast off as "unscientific." I know my own body and I think that often, our gut feelings are dismissed because there isn't a readily available scientific explanation. As we've seen through history, medical opinions change and known effects of drugs/hormones/chemicals are slowly discovered. Doctors should be open to the possibility that we actually know our own bodies.

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